@marcyleecorgan: While I appreciate the thoughtfulness of your remarks, it will not be until you have walked a mile (or three years) in my shoes that you will ever be able to fully understand why I feel as I do.
We had multiple pregnancy losses before our daughter was born. When she was born, and was taken away to the NICU, they refused to bring her back to me until I spoke with a doctor - who was there with adoption papers. He kindly told me that "it" could be given up for adoption right now, and placed into state custody and we could try to have another baby that did not have "it's" problems. It was not until I grabbed his tie, jerked him down to where we were face-to-face and I screamed at him that he would bring me my baby now, and never show his face or those papers to me again that he got the message that I. wanted. my. baby. I am told that I also informed him that SHE is a girl, and what her name was, and a bunch of other stuff. I was so mad I was literally seeing red.
We didn't care about her feet, or her legs, or if she would ever walk. We didn't care about other than she was our child, our baby, and we were going to take her home, and love her forever.
She had her first casts before she was a week old. She has endured more, with more grace and dignity than any adult I have ever known. She has never lived a day of her life without pain, without inconvenience. She is bright, and funny, and beautiful, and has a seemingly endless capacity for love. And every day I thank God that I was chosen to be her mother because she is such an exceptional human.
So yeah. It's a little emotional for me. And if that is the "worst" thing I ever write on these pages, I'm fine with that.
@Euby
I know - I
*know* you are a kind and thoughtful and wonderful person. And I'm sorry I blew up. By now, you have figured out that is kind of a hot button issue for me...
We had to -
for three long years - listen to snarky remarks, and endure the stares, the whispers, and the outright hostility while standing in line at the grocery store, or "playing" in the park (which was mostly us sitting on a blanket in the grass LOL), or even waiting at the doctor's office in the reception area - from other parents, grandparents, and concerned adults.
And here's the thing - we appreciated that they were concerned. We really did. But the horrifying part was those people all passed judgement without once coming over to even ask *why* the baby was in plaster to her hips on both legs. And those who did approach us unfailingly did so from the standpoint that we were guilty before they even asked. They were inevitably rude, hostile and openly contemptuous of us as parents. On more than one occasion, well-meaning citizens would follow us to the parking lot and copy down our license plate number. Thankfully, that mostly stopped when we put a bright red bumper sticker on the rear of the van that said "My child is a patient at the Shriner's Hospital!" and a second bumper sticker that had the Shriner's "Walking Tall" logo and the nationwide toll-free number for the Hospitals on it.
It did not help our situation that literally, just days after she was put into those first casts, a local child who was in a full body cast (from previous child abuse) died in a horrifying fashion because the mother's boyfriend got tired of hearing the child cry. We weren't the only local family that was harassed by well-meaning individuals during this time; we knew a couple of other families (from our participation in the Shriner's Hospital program) who went through very similar accusations and encounters.
My whole point to everyone is this: Never assume anything. All of us here know about "invisible disabilities", right? It's not a surprise to anyone here that those exist, and that they are accommodated. Just don't assume why a child (or an elderly person, or anyone) is visibly undergoing treatment.
And now, back to the original topic, please.