I am new to the dis and really enjoyed all the information here and the wonderful people. I hang out at the theme parks board and the comm. board. I did read the insensitive thread and it made me all the more aware of disablities(I coundnt help but cry at times).
I just posted a thread with ?'s about fibro M on the community board (never even occured to me to post here ..sad isnt it) I have had Lupus for 5 years now. Some really rough times and some really good ones. I live fairly well with it. The doctor recently suggested fibro M for some new symptoms I'm been having. I know its a sister to lupus and it is a hard disease but geez..my minds spinning but its not spinning about the disease..its about the possiblity that I am disabled..it neever occured to me! A wonderful person posted about it and gave great info..but referred to it as a disablity and to come check out this forum.... Now that Lupus is a disability may sound obvious to you. .. even to me regarding OTHER PEOPLE because I know it can be hard but never applied it to myself. I have dealt with the fact of life or death..quality of life and such forth. I make every moment count with my daughter.. but by god I never ever thought to say disable in context to me...it is like a light just dawned. I know this is long and I am babbling but geez..it never even occured to me. I knew I would have to take it easy at the world, But all of a sudden I am thinking..what if I do get tired..what if I do need to rent a wheelchair! I dont look sick!. I guess I was even fooled by myself for not looking sick. (that sounds so dumb right now.)
sorry..just needed to vent and let this out.
I'm in a little shock.
I just posted a thread with ?'s about fibro M on the community board (never even occured to me to post here ..sad isnt it) I have had Lupus for 5 years now. Some really rough times and some really good ones. I live fairly well with it. The doctor recently suggested fibro M for some new symptoms I'm been having. I know its a sister to lupus and it is a hard disease but geez..my minds spinning but its not spinning about the disease..its about the possiblity that I am disabled..it neever occured to me! A wonderful person posted about it and gave great info..but referred to it as a disablity and to come check out this forum.... Now that Lupus is a disability may sound obvious to you. .. even to me regarding OTHER PEOPLE because I know it can be hard but never applied it to myself. I have dealt with the fact of life or death..quality of life and such forth. I make every moment count with my daughter.. but by god I never ever thought to say disable in context to me...it is like a light just dawned. I know this is long and I am babbling but geez..it never even occured to me. I knew I would have to take it easy at the world, But all of a sudden I am thinking..what if I do get tired..what if I do need to rent a wheelchair! I dont look sick!. I guess I was even fooled by myself for not looking sick. (that sounds so dumb right now.)
sorry..just needed to vent and let this out.
I'm in a little shock.