Imanonymous
Earning My Ears
- Joined
- Oct 29, 2015
Are there any parents out there whose children have this diagnosis? (Deletion of 4p?)
I've just found out my baby is diagnosed with this, and I am trying to get information. They've told me that the deletion is large and so some information may not apply to my child- but I'm wondering what abilities children with this, especially severe forms, may have. Will they be in diapers for life? Can they feed themselves? I was told it was possible he would not speak or walk, and will almost certainly have a seizure disorder- but I want to see what CAN he do?
I'm just a bit in shock.
I've just found out my baby is diagnosed with this, and I am trying to get information. They've told me that the deletion is large and so some information may not apply to my child- but I'm wondering what abilities children with this, especially severe forms, may have. Will they be in diapers for life? Can they feed themselves? I was told it was possible he would not speak or walk, and will almost certainly have a seizure disorder- but I want to see what CAN he do?
I'm just a bit in shock.