Well I don't know if I technically fit under this thread anymore...but I wanted to update you guys anyway. I had my appt. and I am scheduled for surgery on April 8th. After looking at the most recent ultrasound the surgeon stated that one of the bigger cysts. I had had indeed ruptured which caused me a lot of pain. ( had to go to Er last week for nausea, loss of appetite, swollen abdomen, and extreme pain) The surgeon believes I have stage 4 endometriosis which will have to be treated aggressively. I will have to be on strong hormone pills to put me in Pre-menopause for the rest of my life. He also believes that the endometriosis has caused a bunch of scar tissue and inflammation and is actually pushing and invading all of my abdominal organs...so he will be doing an initial laparoscopy up by my ribs( anybody have somthing similar?) so he can put the scope down and look from that direction. A lot will depend on what he sees when he gets in there, but he does believe that I will most likely lose that one ovary that's encompassed by the large cyst and it might end up as an abdominal incision if there is too much going on. I still have a solid tumor that will have to be biopsied and taken out..guess I will find out then if I have cancer in addition to endomitriosis. I have mixed feelings..happy that it is going to be taken care of so soon....but also scared and nervous for it to be happening so soon as well..if that makes any sense. I am super glad I Went to Disneyland this week and am just hoping for a fast and healthy recovery.
I so hope this will turn out to be good news for you. Better menopause and medications than stage 4 cancer! Painful and emotionally tough but not terminal. HOpe that the solid tumor is just an anomaly. But as far as I am concerned, you still belong in the group. Stage 4 endo is stage 4 something! Much better to have no terminal diagnosis. But you are supportive and friendly and I think those are the only real criteria for a group like this. Rules can't be too strict!