This board could not have come at a better time. My dh has autoimmune hepatitis and has had for 4 1/2 years. We have been hoping for remission, and we thought we had achieved it. But we got the latest biopsy results Thursday and he is not in remission. In fact, it seems the rate of cirrhosis has sped up. He's also developed another liver condition called NASH, which can be improved with diet and exercise, but further increases his possibility of liver cancer.
I have some wonderful friends on the CB, but it does sometimes seem like I'm bringing them down (even though they say I'm not) when I talk about it.
I was shocked he wasn't in remission, even the dr. thought he would be. And further shocked that the disease is progressing even faster and that he has a new one on top of it. Currently, his only symptoms are fatigue and very bad muscle spasms, for which he takes tonic water. Sometimes it helps, sometimes it doesn't.
I got very angry on Thursday, very sad Thursday night. I've been jumping between the two since. I am a teacher and had to teach Friday, so I kept it all in check. Some of my fabulous DIS friends emailed me through that day and it helped so much.
We have two young sons. The smallest is too young for anything besides "Daddy's sick". The older we had some trouble with when dh was first diagnosed and he was in counseling then. I explained to him last night just that "Dad's liver is still sick and we need to make some changes in how we eat"..........he's angry again.
I'm so happy to have this place.
I have some wonderful friends on the CB, but it does sometimes seem like I'm bringing them down (even though they say I'm not) when I talk about it.
I was shocked he wasn't in remission, even the dr. thought he would be. And further shocked that the disease is progressing even faster and that he has a new one on top of it. Currently, his only symptoms are fatigue and very bad muscle spasms, for which he takes tonic water. Sometimes it helps, sometimes it doesn't.
I got very angry on Thursday, very sad Thursday night. I've been jumping between the two since. I am a teacher and had to teach Friday, so I kept it all in check. Some of my fabulous DIS friends emailed me through that day and it helped so much.
We have two young sons. The smallest is too young for anything besides "Daddy's sick". The older we had some trouble with when dh was first diagnosed and he was in counseling then. I explained to him last night just that "Dad's liver is still sick and we need to make some changes in how we eat"..........he's angry again.
I'm so happy to have this place.