Inflammatory Breast Cancer

[Dan Murphy]

What GREAT news! Thanks for keeping everyone posted.

(Climbing up on my health educator soap box for a moment....)
Now, to all those ladies (and gents) that might be reading this thread still....please, if you don't know anything about IBC please take a moment to learn about it. (www.Komen.org) IBC is a very rare form of BC, but a very serious one. IBC is almost always Stage IV at diagnosis. IBC presents differently from 'typical' BC in that there is no lump. I repeat...NO LUMP. So for everyone getting their mammos...IBC would not show up on a mammo as a lump (it may show up as a thickening of cells on the surface of the breast, but not as a lump). For everyone doing their self exams and getting a clinical exam, again, you would not feel a lump. (very different from what we have always heard and learned - to feel for a lump) So ladies, know your b@@bs! Know what's normal for you, and report any changes to your doc asap. And again, the Komen website is a great place to go for more info.

Sorry for hijacking the thread momentarily, but BC education is near and dear to me. I lost a friend at 36 and have become very involved in fundraising, awareness, and volunteering. I can't let a golden opportunity to educate pass by.

OP - again, soooo happy to hear your good news!!!

So true. We have lost several DIS ladies here on the DIS, all young, to IBC.

 

[Tinker'n'Fun]

Great News. I must admit I was afraid to open the thread to find out the results, even crossed my fingers!

 

[MinnyGranny62]

Wonderful news..so glad for you. Shirley

 

[Kathy C]

So happy to hear the good news!

 

[mommasita]

EXCELLENT News!!!

 

[Hillbeans]

What GREAT news! Thanks for keeping everyone posted.

(Climbing up on my health educator soap box for a moment....)
Now, to all those ladies (and gents) that might be reading this thread still....please, if you don't know anything about IBC please take a moment to learn about it. (www.Komen.org) IBC is a very rare form of BC, but a very serious one. IBC is almost always Stage IV at diagnosis. IBC presents differently from 'typical' BC in that there is no lump. I repeat...NO LUMP. So for everyone getting their mammos...IBC would not show up on a mammo as a lump (it may show up as a thickening of cells on the surface of the breast, but not as a lump). For everyone doing their self exams and getting a clinical exam, again, you would not feel a lump. (very different from what we have always heard and learned - to feel for a lump) So ladies, know your b@@bs! Know what's normal for you, and report any changes to your doc asap. And again, the Komen website is a great place to go for more info.

Sorry for hijacking the thread momentarily, but BC education is near and dear to me. I lost a friend at 36 and have become very involved in fundraising, awareness, and volunteering. I can't let a golden opportunity to educate pass by.

OP - again, soooo happy to hear your good news!!!

OP = so glad to hear that your results came back without IBC! I am sure you are so relieved.

EKBall - you are so right - MIL had been having mammo's for years right on schedule and never had any lump in her breast yet there she was developing stage 4 cancer in her breast that spread to her spine and bones. She had really no symptom of IBC at all - in fact i am not even sure how it was found to be IBC after all - I am sure her bloodwork was way off the charts.

 

[minniebeth]

Wonderful news!

 

[annrae]

JerseyGirl, we have a breast cancer survivors thread here on the Dis. Come hang with us if you like, we've all been through the biopsy/waiting process. http://www.disboards.com/showthread.php?t=1710007&referrerid=70088 (Internet reading is really scary. You naturally think the worst. I probably wouldn't read a lot unless I found out I had IBC and HAD to read it. No two cases are ever exactly alike.)

Hillbeans

 

[annrae]

Hi Linda - I hope you can help me - I'm posting again but I can't sign in with this new format. It asks for my profile and I wrote a short paragraph but it appears in the right margin of the Webmaster's post on the first page. Hate to bother you as you are probably shoveling as we are - can you help me with this? Thank you so much. Barbara

 

[Dan Murphy]

Hi Linda - I hope you can help me - I'm posting again but I can't sign in with this new format. It asks for my profile and I wrote a short paragraph but it appears in the right margin of the Webmaster's post on the first page. Hate to bother you as you are probably shoveling as we are - can you help me with this? Thank you so much. Barbara

Hi Barbara.

What is it that you are looking for?

 

[Pea-n-Me]

Hi Barbara, I am here. Can you go under "Conversations"? It's the old "Private Messages".