Sending prayers and
What are your numbers if you don't mind me asking and how are you feeling, in general.
My mom is at stage 5 kidney disease but not quite ready for dialysis. She is still eating fairly well. She eats breakfast and dinner....her appetite has lessened and eats because she has to. Lost taste for meat. She has a multitude of other health problems and not a candidate for hemodialysis or a fistula in her arm or leg. Therefore, peritoneal dialysis and my dad will be doing it at home. The access port isn't done as far ahead as the fistula is, so she hasn't done that yet. Due to her other health issues (many strokes, blocked brain artery, etc, etc, she is nearly homebound and is in a
scooter or wheelchair. She can walk a tiny bit with a walker but is very unsteady.
At any rate her creatinine went up at her last renal visit but thinking it was due to the lasix, they took her off of that for 2 days and lowered her dosage. Her creatinine went up again and without her usual dosage of lasix, she was retaining fluid and got a cough. She does have some fluid around her heart that is monitored. Once back on the proper lasix dosage, the fluid lessened as did her cough.
She is not a candidate for surgery, so when it is time, we worry about if she can make it through surgery. She also has a nodule on her lung that is increasing and enlarged lymph nodes in her chest but the nodule isn't large to biopsy but probably won't do anything anyway, so why put her through that.
The renal doctor told my dad to look for loss of appetite, as in not really eating and/or vomiting. Those would be good indicators of the timing of dialysis.
Wishing you all the very best and you will go to WDW...it will happen.